AOA - OMED Research Posters 2024-OMED24-POSTERS

Video Transcription

Video Summary

Paige Conrad, a medical student, conducted a study analyzing Huntington’s disease discussions on TikTok. The study examined the top 100 most-liked videos relating to the disease, identifying four key themes: caregiver and family perspectives, education, patient experience, and genetic inheritance. Caregivers commonly shared their struggles, while educational content focused on disease awareness and fundraising. Patients shared personal experiences, and genetic videos discussed testing and inheritance. The findings suggest that social media can be a valuable platform for support and education on Huntington’s disease, with future research needed to further explore tailored support and educational initiatives.

Keywords

Huntington's disease

TikTok

caregiver perspectives

genetic inheritance

patient experience